Personal tools

You or your child do not have a diagnosis yet?

Do you need support in the search for a diagnosis? We are here to help. Please follow these steps to utilize the services of the USE:

  1. Patients, relatives, and physicians who wish to reach out should first have the initial questionnaire completed by their specialist. This helps us make an initial assessment of the case.
  2. We also require the signed patient questionnaire, in which the patient provides personal information and details about their symptoms.
  3. Additionally, a referral form to our center from your specialist is needed.
  4. Copy all relevant medical findings that describe your symptoms.
  5. Send all documents (referral form, both questionnaires, and findings) by post, email, or fax to:

Contact:  University Hospital Carl Gustav Carus

                 at the Technical University of Dresden

                Tanita Kretschmer

                Fetscherstraße 74

                01307 Dresden

               Tel.: 0351 458-5608

               Fax: 0351 458-7297

If you are seeking a diagnosis for your child, we have a specific questionnaire for children and adolescents up to age 18.

  • For more information on rare diseases, visit orpha.net or se-atlas.de.
  • Are you looking for support groups or would like to connect with others affected by a rare disease? The ACHSE e.V. organization can assist: achse-online.de.
  • Do you require assistance translating medical terms? You can use the free report interpreter "Was hab’ ich": washabich.de.

                

FAQ

  • What happens after I submit all my documents to USE?
  1. First, we assess whether the case requires evaluation by USE.
  2. If accepted, we determine whether referral to an existing specialized center (in Dresden or elsewhere) would be suitable or if your case should first be discussed in our interdisciplinary case conference.
  3. In this conference, specialists from various fields discuss the best approach for your case.
  4. The results of this conference will be shared in a final report, which will be sent to both you and your referring specialist.

 

  • Is a personal appointment possible at the center?

Currently, the USE does not offer in-person consultations or appointment bookings. Consultations are exclusively conducted by phone:

Tel: +49 351 458-5608
Telephone consultation hours: Tuesdays and Thursdays, 9:30-11:30 am

  

  • How long will it take to process my case?

Our processing times depend significantly on the complexity of your symptoms and medical records, as well as the number of disciplines involved to provide optimal interdisciplinary diagnostic and therapeutic decisions. The current demand at the USE also affects processing times. Please be aware that the processing time for your case may currently take up to three months.

If you have questions about the status of your case, please contact our coordinator via email or during our consultation hours.

  

  • What will the final report look like, and will I receive a definitive diagnosis?

The content of your final report may vary. It could include further diagnostic or therapeutic steps or specific referrals to specialist clinics. A definitvie diagnosis may not be possible in every case.

  

  • My symptoms persist despite following the recommendations in the final report, or my condition has changed since the USE processed my case. Can I resubmit my case to the USE?

A re-evaluation of your case may be conducted, for example, if there have been changes in your medical findings. This re-evaluation is possible 24 months after the initial assessment. After thta ttime has passed, feel free to contact the USE again and provide the updated medical records.

  

  • What happens to my documents after I receive the final report from the USE?

After your case has been reviewed at USE, your documents will be digitized, and the originals will be safely destroyed according to data protection guidelines. No originals will be returned. Therefore, please only submit copies of relevant medical findings.

  

  •  Some of the medical terms and statements in my final report are unclear to me. Who can help me with this?

If you need help with understanding medical terminology, please contact your referring primary care or specialist doctor. Alternatively, you can use the free service "Was hab’ ich?" (www.washabich.de) for translation assistance.

Diagnostic Process

DIAGRAMM TBA